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"Poetry should please by a fine excess and not by singularity. It should strike the reader as a wording of his own highest thoughts, and appear almost as a remembrance."
- John Keats
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ZIN Product Number: 10049311
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| | | |  | | | Product Details
 Format: Hardcover, 288 pages
Publisher: Columbia University Press
ISBN: 0231121628
Release Date: Jan 4, 1999
| |  | | | In Brief
Genetic technologies have moved off the pages of science fiction and into our everyday lives. In this pathbreaking book, Lori Andrews offers a new plan for making decisions as individuals and as a society based on emerging issues of ethics and science by providing the first detailed glimpse into how genetic testing can change your self-image, your
| | | | From The Publisher
Genetic technologies have moved off the pages of science fiction and into our everyday lives. Internists now offer genetic testing for cancers and early coronary disease. Obstetricians make genetic predictions during pregnancy about a baby´s future health. Even dentists are getting into the act, offering testing for a genetic propensity to peridontal disease. In this pathbreaking book, Lori Andrews provides the first detailed glimpse into how genetic testing can change your self-image, your relationships with loved ones, and your expectations about your children. She documents how ill prepared doctors are to deal with complex genetic issues. Andrews also uncovers the ways in which employers, insurers, schools, and courts have discriminated against people on the basis of their genetic make up. She traces the legal case history of genetics litigation and legislation and describes the ethical and social protections that need to be in place so that the Human Genome Project does not lead us directly toward Brave New World.In Future Perfect, Lori Andrews offers a new plan for making decisions as individuals and as a society based on emerging issues of ethics and science. Who should have access to your personal genetic information? Should genetic treatments be used to enhance characteristics such as intelligence in "normal" individuals? Should gene therapy be undertaken on embryos, changing their genetic inheritance, as well as that of future generations? If a woman learns she has a genetic mutation predisposing her to breast cancer, does she have a moral or even a legal duty to share that information with an estranged relative? Andrews considers the answer to these and many other questions that have profound implications for health care providers, medical organizations, social institutions, legislatures, courts, and ordinary people.
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| | | |  | | | | Acknowledgments | | | Ch. 1 | Genetics Enters Our Lives | 1 | | The Rapid Integration of Genetic Tests Into Clinical Practice | 2 | | How Genetics Differs from Other Medical Realms | 5 | | Commercialism in Genetics | 8 | | Simplifying Genetic Tests | 10 | | Exaggerated Faith in Genetics | 11 | | Charting the Future of Genetic Policy | 13 | | 2 | Competing Frameworks for Genetics Policy | 15 | | Historical Context of Genetics | 19 | | Alternative Frameworks | 21 | | The Medical Model | 22 | | The Public Health Model | 25 | | The Fundamental Rights Model | 27 | | Seeking a Framework for the Future of Genetics | 29 | | 3 | The Impact of Genetic Services on Personal Life | 31 | | Impact on Self-Concept | 31 | | Use of Genetic Services | 40 | | 4 | The Changing Face of Parenthood in the Genetics Era | 56 | | Impact on Reproduction | 56 | | Impact on Decision About Children | 66 | | Reconceiving Parenthood | 75 | | 5 | The Impact of Genetic Services on Women, People of Color, and Individuals with Disabilities | 77 | | Women and Genetic Services | 77 | | People of Color and Genetic Services | 90 | | Individuals with Disabilities and Genetic Services | 97 | | Protecting the Disadvantaged | 106 | | 6 | Problems in the Delivery of Genetic Services | 107 | | Physician Knowledge About Genetics | 108 | | Quality Assurance in Testing | 110 | | Genetic Hubris | 116 | | Medical Pressure to Use Genetic Services | 119 | | Impact of Physicians Beliefs and Personalities on the Provision of Genetic Information | 122 | | Informational Materials About Genetics | 124 | | Enhancing the Quality of Genetic Services | 129 | | 7 | The Impact of Genetics on Cultural Value and Social Institutions | 130 | | Predicting Future Academic Worth | 131 | | Predicting Future Health Care Needs | 132 | | Statutory Responses to Insurance and Employment Discrimination | 138 | | The Lack of Protection for Medical Information in General | 140 | | DNA and Social Decision Making | 142 | | Genetic Determinism Takes Hold | 145 | | 8 | Which Conceptual Model Best Fits Genetics? | 151 | | The Medical Model | 152 | | The Public Health Model | 153 | | The Fundamental Rights Model | 160 | | Legal Justification for the Fundamental Rights Model | 170 | | Drawing the Line in the Genetics Realm | 173 | | Combating Genetic Hubris | 176 | | Notes | 179 | | Index | 249 |
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| | | | | | Keywords
Social aspects, Genetic screening, Genetic screening, Social aspects, Medical / Nursing, Medical, Genetics, Ethics, Gender Studies, Social Science, Life Sciences - Biology - General, Science, Life Sciences - Evolution
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